Why is it always the same?

I started Lyrica the other day. It sucks. It’s not helping the widespread pain and I think it’s making me more depressed (if that’s even possible).

The freaking ringing in my ears can stop at anytime. I am seriously ready to just take a screwdriver to each ear and make myself deaf. If you want to know what it sounds like EVERYDAY, ALL DAY visit this link https://www.hear-it.org/Impressions-of-hearing-loss-and-Tinnitus- and click on Tinnitus example 1. It’s the buzz over the music. Imagine that loud 24/7. It’s maddening. I probably will wind up in a looney bin.

On top of all of this, we are supposed to be getting a new furnace through our local community action facility (basically helps poor people with things- yes I’m poor. ). But it isn’t coming until January. Our back up heat – the woodstove- is all well and good but we have MAYBE 2 days of wood left. No agencies around here can help until January. I had saved some money for the past couple months for an activity we are doing in January and wood is now going to take most of it. We started this furnace process in August. I’m praying the company can come before January- this stinks.

Basically everything sucks and is overwhelming. This is also the last 2 weeks of classes and the depression has zapped all motivation to finish this semester strong.

Pray that I can get through this all, if you are the praying type.

Until next time….

So done.

Do you have those days/weeks/months/years when you feel like you are just done.  Done with adulting, with fighting for every thing, with trying to get through the day?  That’s where I am today.  Sick and tired of it all.

The IEP meeting went horribly.  All my predictions came true.  And now we are facing what move to make next.  I am already fighting the school to follow the IEP in place for my son, he has two years left.  I don’t have it in me to fight another 10 years for help for my daughter.  It’s not gotten us anywhere.   So we are seriously considering bringing her home for homeschool again.  Ugh.  So many pros and cons- and neither side has an overwhelming majority.

All through the IEP meeting my whole body was shaking.  I tried to take a drink from my water bottle (which I should fill with vodka next time) and I nearly spilled it all over the table.  I even told the OT I disagree with her.  She’s a useless person.  Little one has an incorrect pencil grip, has trouble forming her letters the “right” way – like she starts her S at the bottom, and she many letter reversals- b and d, p and q sometimes a.  Well the OT said they can’t correct the pencil grip and the formation because it’s now muscle memory and would be too difficult to fix.  As for letter reversals they said they do that in K-1 so they can’t do that, plus in 2nd grade they don’t mark those wrong…. so hubby and I countered with – so we will wait till it’s “a habit and muscle memory that’s too hard to fix” and deal with it when she is failing and getting things wrong.  And basically they said yes.  WTH.  They also don’t want to do an OT eval, because of her non-compliance with tests…. I was like, isn’t that indicative of a problem right there?   She had no answer for that. STUPID.

Normally by now I have gotten Christmas decorations out.  I am dreading it this year.  It all seems like so much work.

I am thankful I am done my Christmas shopping other than what I need to get 2 friends.  Things are getting worse, and at least that’s not hanging over my head.

So yeah… done.

29 minutes…

Twenty-nine minutes until the IEP meeting for little one.  I am a nervous wreck.  This was not the time to take me off my Benzos- holidays where I have to be around people, IEP meetings…. I am just on my way to losing it…. some more than I already have.  I don’t know why I am so scared of this stupid meeting.  I am pretty sure it’s just to discuss why I want the evals I want.  But still….

Posts I never post….

Do you ever pour your heart out into a post and never post it? Just save it to a draft and stuff the feelings down? I do.

So How DO I live???

I have spent a good amount of time thinking about my last post. About how I don’t really “LIVE”.  And the goal of my DBT group is to “have a life worth living”.

So HOW do I live? How do I go out and find happiness, how do I find joy?  I think I have something like a sleep mask over my eyes.  Not only can I not see what’s right in front of my face, I can’t see far enough to find things I enjoy.

I was going to make this post a lot longer, talking about all the things I “used” to enjoy.  All the things that helped me live.  But the more I thought about the things I lost, the tighter I felt blinded from seeing joy.

This, I need to figure out.

Maybe she’s right? Mother knows best?

I can’t let go of the text my mom sent about 6 months ago saying she wasn’t disappointed in ME, but that I don’t have the support I need to SHINE. I keep mulling the word over, trying to figure out what exactly I would need to do to shine, and I just was coming up empty until tonight,

Hubby and I were watching a movie and two people were cliff diving. I made an offhand comment that I would love to do that, that it looks like fun, but in the next breath said I would be too scared. I said “I am too scared to go out in our yard at night” and hubby said “you’re too scared to go out in the daylight”.

The sad thing is, he’s right. And maybe that’s what my mom means. I’m don’t live my life, I’m too scared of everything. I merely get by from day to day, trying not to mess things up too badly. And in all the “getting by”, I never live.

I’m too afraid to fail. I’m too afraid I’ll do something wrong. I’m too afraid germs will make me sick. I’m too afraid of screwing up my kids. Fear runs my life. I can’t plan everything when I leave my bubble so something unpredictable might happen, and that thing might be bad, and bad is… bad.

My brain instantly goes to worst-case scenario, and then all the ways to prevent that. It’s exhausting. So it’s easier to just not live than to risk it all…. and therefore I will never shine.

Well at least I think I have figured that problem out. Can’t have unclosed loops.

Raising Teenagers Is NOT for the Faint of Heart

Big one is 15.  He is argumentative, oppositional, irritable and I am sure there are at least 15 more adjectives.  And yes, all of that is “normal” teenage behavior- but add the Autism Spectrum, bipolar disorder, ADHD, anxiety and possible narcissistic personality.  It’s teenager amplified.

Ive been trying to help him get ready for camp.  He was leaving today.  He wanted to bring half his stuff in random Walmart bags.  He has ZERO executive functioning skills, and he refused to let me even make suggestions without getting angry and screaming at me (at the top of his lungs- I feel like he’s 8 again. (our worst year to date)).

We definitely are not getting along lately…. yet I am the one in his corner.  I am the one making the cog wheels move so that he gets the help he needs, with the “least restrictive environment”.

But there are days I look at him, and I wonder what happened to my baby?  I think back to the day I found out I was pregnant with him, after failed clomid, attempts, failed IUI attempts, and 2 in-vitro cycles, how happy I was.  And when he was born, the struggles with his seizures, the struggle with developmental delays, giving him EVERYTHING I had.  Driving him 80 miles 2x a week for OT, finding him every therapy we could get. I think about the year he was 8.  The year he was violent, angry, physically abusive to me.  And I feel like I earned a little bit easier teenage years.  After all, we have his meds right, we have had therapy in place long enough.  I just want peace.  I want to remember these last few years as a teenager fondly, not with sadness, and regret.

My kids mean everything to me. They are my legacy, they are my best accomplishments, they are the best of me.  They SHINE in every way I don’t.  I gave them all my shine.

Maybe this is how all moms feel during the teenage years.  But this is my first time being there, it hurts, and honestly PLEASE don’t tell me it’s all normal, I KNOW that in my head, but it’s my heart that hurts, and that will only get better with time.