So tired

I am not talking about physically tired- though I guess I am that too- I am talking about a weariness that has settled deep into my soul.  A bone crushing exhaustion that comes from years of fighting.

I am tired of everything always being so hard.   I understand we all have our crosses to bear, our difficulties to get through, but anyone who knows us can and will tell you that we have had more than our fair share.  We have had to fight and jump hurdles for the past 20+ years.  My dad said tonight (when I told him hubby was denied disability and now we have to hire a lawyer) that we are going to get tired of jumping over hurdles.  My response to him was “Dad, I am already tired of jumping over hurdles I am crawling under them”

I have spent most of the week oscillating between angry/irritated and sad, not just sad, I don’t even know what the word is.  That word that means that everything and anything can make you cry.  I used to never cry, now I cry every single day.  It can be a song, it can be the way someone says something to me, it can be anything at all.  I am so tired of being so unhappy all the time.

Will it ever get better, because from this vantage point, I don’t feel like it will ever get any better- ever….

Life block?

I started a post last night about why I haven’t written much lately, but it isn’t so much that I haven’t written lately, it’s not writer’s block- it’s life block.  I am barely living my life.  I am not someone I have ever been, or ever dreamed I would be. Part of me wants to be curled up in bed, or watching TV or reading.  And part of me looks at that part of me with disgust.

That part of me, looks at me and how I am living my life right now and wants to scream “wake the hell up”.  You have two wonderful children- yes they have issues, but they are amazing human beings.  Stop yelling at them for making messes, for wanting to play with slime, for being a typical teenager with earbuds in.  You have an amazing husband who stands by you no matter what.  He’s picked up the cooking when you dropped it, he doesn’t feel well either and yet he humor’s your breakdown.  He listens to every bit of whining you do about your past, or how you look, or how much this isn’t the life you dreamed of.  This isn’t the life he dreamed of either.  He didn’t expect to be unable to work at 38 years old.  He didn’t expect to have to depend on the “system”, he expected to follow in his father’s and grandfather’s footsteps, and work hard all his life, to come home and be a jack of all trades, to be able to take vacations, and be able to do things he wanted to do.  That part of me, looks at me with disgust and disappointment.  Thinks I am selfish.  Hates me.  That part of me knows I am a disappointment to my family, that I have never done anything or accomplished anything.

And that part of me? Hates all of me.  Hates itself for not being stronger, for not being able to “snap out of it”.

I want so badly to wake up tomorrow and to smile, to be thankful for another day, to get up  and make breakfast, happily get my kids ready for school, or better yet still be homeschooling them, to cook my husband a good meal at dinner time.  To be the fun mom that makes slime, that let’s them cook in the kitchen and make a mess.  The mom who understands that her teenager pushing her away isn’t about her, that it’s about growth and independence.

But instead I am trapped in a prison of my own construct.  No matter how much I WANT to snap out of it, I can’t. I have mental illness.  It’s not laziness, it’s not weakness, it’s not selfishness.  It’s just as real as a physical illness.  I KNOW this is my logical mind.  In the part of my mind that Mary Poppins would say my insight lives.  But I can’t seem to accept any truth where I am not at fault for everything.

Another reason I haven’t written is that I just don’t seem to be able to muster up the energy most days.  For some reason that is unfathomable to me, February was a crazy stupidly busy month.  And what 2 years ago I would have scoffed at and completed with ease, makes me need a long nap.  My counselor and I were talking today about the fact that I am just drained all the time, I am grumpy and irritable, I have no hobbies anymore – even the thought of taking out my knitting needles makes me tired.  She told me about the “spoon theory”.  She explained it that we have a certain number of spoons everyday, and as a person with my mental illness has fewer spoons that someone without it.  So where someone without mental illness can get up at 6am, shower, get their kids off to school, make breakfast and maybe work out and only use a spoon, me just thinking about getting up out of bed to face another day uses a spoon.  And showering uses a spoon or two.  That by the end of the day I don’t have any spoons left.  So true. The only reason I have the energy to write all this out today is that I took a nap already, and I am home alone.  Hubby has taken little one to occupational therapy, and big one is still at school.  No one needs me at the moment.

Last night I was laying in bed thinking about how hubby has to take little one to occupational therapy and maybe I should surprise him and make dinner.  I want to do that so much, but just thinking about the work it will take makes me exhausted.  I am going to try.  Even though everything I cook lately comes out terribly, even though it will wear me out.  Sometimes I think I don’t express enough gratitude for all the does for us.  He is the unsung hero, here in the family, holding us up, when he himself can barely stand.   So while he might not be able to work, he is providing something so much more important than financial support, he is carrying the weight of it all on him. I will never be able to pay him back for all he does.  I just wish my family could see the tremendous amount he contributes to our lives.  I wish they would look at him the way I look at him and see a hero.

Need to recognize blessings….

I spent some time yesterday writing about the “shining” I don’t do. But I was remiss to mention that despite our differences, despite my mother being disappointed in me, despite my feelings of envy of my siblings. I love them. So much.  I don’t think it would matter to me so much what they think if I didn’t.

Today I asked my mom if she was going to get another goat when hers dies and one of her reasons for saying no was the goat may outlive her- her current goat is 14. My mom will be 65 this year. That would mean she expects to die by the time she’s 80? My grandmother lived to 85, my grand father 90.  And if she doesn’t come down with cancer like he did I see her living to her 90s as well… or at least I hope.  But I told her I wasn’t happy she said that.  As I was sitting at her table today looking at the pantry that enters into her den, I was almost not “there”.  I was sitting at that table, and people were walking around, with plates of food, dressed in black talking about how special she was…. that was an eerie feeling.  I don’t do funerals as I have mentioned before…. so there was the first “off thing” but to be sitting there and to have such a real intrusive thought enter your brain was hard.

We spent a lot of time today talking about looking back.  Looking back over our lives for regrets and things we are happy about…. I spent a lot of the day sad. Sad about what I coulda/woulda/shoulda done.  Sad that my time has “passed”.  At 40 there aren’t many big dreams you can make and achieve. I should be “coasting”now, but I still don’t know what I want to be when I grow up.


My dear brother has me hooked on a song by Ed Sheehan – Supermarket Flowers.  He wrote it for his grandmother who had recently passed. If you haven’t heard it, and are in the mood for a good ugly cry open youtube and have a listen.

When I hear the song I think about my mom. But I am not so sure it’s MY mom I am thinking about.  I think it’s partially her, and partially the mom I wish she was.  The mom who always picks you up when you fall.  Needless to say, every time I listen to it at the very least I get choked up, but usually I shed a few tears and often have a good ugly cry.

There is a line towards to the end of the song where he says:

You were an angel in the shape of my mum
You got to see the person that I have become

That bit of the song made me wonder every time. Obviously Ed’s grandmother had been proud of him, look at what he had accomplished.  But I wondered what my mom thought. My gut told me that I am an embarrassment.  On disability, poor, have mental illness, never finished college, never got that “big job”, never really did much with my life in term of success the way the world defines it. I have a husband who worked his butt off to support us for 20+ years, but then became disabled as well. We lost our house, our car.  We are not like anyone else in our family financially or career-wise.  My sister got a bachelor’s degree, a master’s degree and became a dually licensed therapist, with her own practice and employees.  Her and her husband make a whole lot of money, and live a life where they don’t have to worry that the next time her kid grows out of sneakers it will break their budget beyond repair.  She is not obese, and she is “the pretty one”.   My brother is what I would consider a big whig at one of the largest banks in America.  He is extremely successful and has climbed the ladder at the company from the ground up.

So after weeks of wondering what my mom would say if I asked her about “the person I have become”.

So the other day, on a particularly sad day, I thought what the heck let’s make it worse and ask her.

Me: (8:00am) Please don’t call me back about this- I’ll cry and I’ve cried enough today- are you disappointed in the way my life has turned out?  Disappointed in who I became?

Mom: (2:07pm) Am I supposed to answer this? U said not to call you.

Me: (2:08pm) Yes you can text, just don’t call, if I hear your voice I’ll cry.

Mom: (2:11pm) No I am not disappointed in you. I am disappointed you don’t have the support you need to shine.


What does that mean?  I haven’t been able to stop thinking about it. I can’t shake my feelings of sadness. My mom isn’t disappointed IN me, but she’s disappointed in my life.  She’s disappointed I don’t “shine” in her eyes.

Shine- what could I do that would make me shine in her eyes? Make lots of money? Have a really good job?  Have children without mental health issues? Not have mental illness myself?

I know at least a part of it she blames on my husband.  My sister, step-father and mother have all made comments over the years that make it obvious they don’t like certain things about him.  My step-father went so far as to say that my husband “mis-uses” me.

My husband doesn’t misuse me.  And it’s not his fault I don’t shine.  I made the choices that have made me who I am and if I don’t shine that’s on me.

I know I am fat and not as pretty as my sister. I got my dad’s genes, I was doomed before I was born.

I know I didn’t graduate college (not for poor grades or lack of funding – which my parents didn’t help me with AT ALL might I add) but because of different priorities- namely wanting to be a wife and mother.

I know we are poor and that’s an embarrassment. I know we drive beat up vehicles that are loud and ugly.

I know we don’t buy locally sourced organic food.

I know I don’t make my own soap, lotion, and deodorant.

I know we don’t grow 99% of what we eat.

I know that I have children with issues and I know you blame me and my parenting for them.  I swear if I could have done something that would have prevented, autism, bipolar, ADHD and anxiety I would have done anything. I would have traded my life for it, because my children will suffer their entire lives.

Shine.  The word just keep rolling over in my head.

I don’t shine… am I tarnished silver? That with a little polishing could shine again?  Am I a star that has lost it’s shine because it’s dying and it’s light is flickering?  Am I like flat or matte paint and no matter what I do, I will never become high-gloss?

I don’t think there was ever shine in me.  I think that shine was put out long before I ever became an adult.

But that doesn’t change the fact that I will never be someone my mom is proud of.  Ive talked to a friend and my husband about this, and they both tell me not to let it bother me.  My husband says it’s not an insult (sorry I don’t buy it).  My friend told me not to worry about it because she’s not the most supportive person in the world, and that money isn’t everything.  And yes she’s right.  But…


No matter how old you are you want your mother to love you, to be proud of you and to “be there”. No matter how old you get you want your mother.

I have had an extremely emotional week.  Not for any particular reason. I am just sad, and when I am not sad I am angry, frustrated or irritated.

Tomorrow I have to go to my mom’s.  My sister will be there too.  I offered to let my husband stay home.  He’s sore from falling down the stairs, and pretty much just from living and we both feel like he will be judged because of what he can and can’t do.  But the thought of going alone is terrifying.  I’m dreading it, I can’t wait for the day to be over- and it hasn’t even happened yet.

Well I guess that’s all, nothing really to say other than I am not doing well at all.



Memories- Things that sometimes remind me how lucky I am to have the life I have, problems and all.

I said a while back my goal for this year was to read 52 books. I am a little behind where I should be to meet my goal, but I am not really too concerned.

Today I finished Eleanor and Park by Rainbow Rowell.  I cried at the end.  Holding back the ugly cry as best as I could because my little one was here and she always gets upset when I cry.  And I can’t honestly tell which tears were tears of sadness at the book, tears of happiness for how lucky I got, or tears of relief for the fact that I… that I got my cake and can eat it too.

Eleanor and Park is a book I assume set back in the 1980’s given the references they use and the words like “Walkman”, “mix tapes”, and so many other references .  Without spoiling the book for anyone who might want to check it out, Eleanor is a girl round the age of 16.  She lives in a house with her 4 siblings, her mom and her abusive step-father Richie.  She had been living away from them for about a year because Richie kicked her out, but she eventually was able to come home. She started back to school and immediately, on her first day, on the bus ride to school no less, people started picking on her- teasing her about her wild red hair, the way she dressed, because she wasn’t toothpick thin.

No one would let her sit with them on the bus, until finally a boy name Park told her to sit with him. It took a while for them to become friends, and even longer for them to be more than that.  Eleanor had so many walls up inside of her from being mistreated and unloved her entire life.

The book chronicles their journey in first love.  But this book also reminded me of my story.

I lived with my mom, my dad, my little sister, and my half brother (from time to time). My dad was a mean, cruel, controlling man.  He physically, mentally and emotionally abused all of us.  Even my poor brother when he would visit.

I also didn’t have many friends at school.  I was picked on through elementary school, junior high and high school.  I don’t look back on the times spent in school with fond memories.  Most of the time I think of the worst days of my life.  The days I would cry myself to sleep, the days I would try to make myself invisible- because if I was invisible they wouldn’t pick on me mercilessly.  I think of the fact I became anorexic and lost a huge amount of weight because maybe if I wasn’t “the fat girl” they would like me (they didn’t).  Maybe if I lost weight my dad would stop making fun of my size – he didn’t. It drove me into depression.  Into even worse anxiety, and into self harm.  I had a couple friends in high school, but I didn’t talk to them about my life at home.  There was one friend, I spent most weekends at her house for years.  For years I wished her parents would adopt me.  I wanted her life.  Her house was my safe haven.

Until I saw him.  Somehow I knew the evening I saw him in my high school cafeteria, that it would all be ok, somehow. We became friends, then more. I was desperate for him.  I craved his love.  I couldn’t breathe without thinking of him.  He made my life worth it.  He loved me, unconditionally.  I had never had that before.  He saved me from my father, from my tormentors, from myself.  People still made fun of me, be sure of that, but it didn’t matter so much.  I had someone who loved me, all of me, battle scars, bruises and all.

We were almost immediately inseparable. The friends we each had felt displaced, but we just couldn’t stand to be apart.  It didn’t help we went to different schools, but we saw each other as much as humanly possible.  We talked about everything.  He knew everything about my past, things I had never told anyone.  I shared my hopes and dreams with him- dreams that somehow included him the minute we met.

People thought we were too much.  Too obsessed. Spent too much time together.  We were just “infatuated”.  But we knew; we knew even then that we would be together till death do us part.

And now, almost 23 years later, I still have all those scars, all those bruises, and some new ones, but he still loves me.  I loves me 100+ pounds heavier, when I’m sometimes broken, when I’m sometimes angry (at life really), when I am envious of others and their apparent lack of bruises and brokenness. He loves me with the purest, most unconditional life I have ever experienced in my life.

I still need him.  I am still desperate for him.  I still crave his constant companionship. And while our life hasn’t turned out exactly as we planned I wouldn’t trade it for anything.  He is my best friend, he is my first real love, the first person who really SAW, the real me, not the person I show the world I am.

Sometimes I think back to the nights we were teenagers making plans for our future, despite everyone telling us we would never last.  Telling us we were just kids. Yes, we were just kids, only a couple years older than our oldest is now, but the minute we saw each other we realized we completed each other.

What does all this have to do with the book?  There were so many similarities between Eleanor and Park and my husband and I.  Reading through it, brought up so many memories and feelings. I don’t think I have related to a character in a book like I related to Eleanor- ever.

This book definitely gets four stars from me. How could it not?

Are you kidding me?

Little one and I have had a cold since last Sunday.  No big deal, I have very little voice, not as stuffed up as I was and no sore throat.  Good deal.  Little one isn’t as snotty I thought she was on the mend… but tonight after I put her to bed…. I heard it… the telltale sound of vomit hitting the hard wood floor. Awesome.  3 days before Christmas, the night before we are to see Disney on Ice.  Thank goodness I didn’t tell little one we were going.

I swear if the rest of us get the pukes I will know the universe is against us 😦 I know probably sounds like I am being a little dramatic, but I am just so tired of 2017, and 2016 sucked, as did 2015 and 2014.  So yeah…..

I am just sick of my life.  Sick of being poor, sick of worrying about money constantly, sick of fighting for what my special needs children need, sick of dealing with narcissistic family members, sick of being in pain, sick of my husband being sick and in pain, sick of dealing with a mentally ill child who has violent outbursts, sick of dealing with a mother in law who hates me, sick of being a disappointment to everyone in my life, sick of being anxious, sick of OCD, sick of depression….

And if it weren’t bad enough- little one asked me today when I was going to be skinny like I was when daddy and I got married, because Im sort of bigger now.  She was at least trying to be nice about it.

Sorry – just having a pity party over here….


I need to vent….

If you don’t like what I put on my Amazon wishlist, if you don’t like the things that I WANT, then don’t buy off of it. Don’t complain about it, don’t get upset, just buy me the clothes you are going to buy me anyway.  Or better yet- just don’t buy me anything at all- I don’t care. I am sick of spending holidays with you anyway.  I am sick of the belittling comments, the things you say under your breath, the way you degrade me, and the way you judge me, my parenting, my decisions.  I wish I had the ability to tell you that you aren’t welcome in my home this year. I need a break from you and your bad attitude.