Reset day 1… again.
That is all.
Reset day 1… again.
That is all.
The other day I was thinking about how much time I spend scrolling up and down my newsfeed, and refreshing over and over again. I decided to shut off all notifications of facebook (but not messenger since that’s my main means of communication with just about everyone). I moved the app to an unused page of my phone screen.
Poof. Less facebook = so much more time for everything else right? WRONG. Haven’t been to facebook in 2 days so far. But I find other ways to waste my time- staring at the kitchen clock works well. As does laying my head on my laptop. Oh Oh and sitting staring into space. There’s not shortage of time wasters in my vicinity.
I have had super duper anxiety lately, and yet very little affect. I just have no motivation to even move my face… but my legs are jiggling like crazy under the table….
I need to get motivated and get through this semester then – graduation at which time I can commence sleeping in my chair all day again.
Sometimes I wish I had written this without anyone in my “real” life being able to read it. I have been very careful not to identify myself for strangers who might know me in person, but I know of a few of my friends and family who read this.
But that makes it hard for me to talk about several topics. I don’t feel like I am able to talk about my frustrations with certain things (and people) in my life.
So on to what I feel like I can say. First of all over the past couple of years I have become an expert in faking it. We just had some people here that coordinate the mental health workers for my kids. They commented on how happy I seemed. Ha! Little to they know how I have been feeling today. Little do they know how with deliberateness (Is that a word) and calmness I self-harmed this morning. I have to reset the “clock” I have – 160 days I made it. But this morning I just needed relief, and it felt good.
I’m at that scary place where it all seems fine on the outside but on the inside I am a bubbling mass of mess.
I guess that’s all….
Which title fits this post the best? You decide.
I had big plans to write here more often in 2019. I planned to chronicle my crawl back to … I don’t know where. Maybe just my crawl forward…. but as always life gets in the way. First we went on a family vacation- which was nice. It’s been a long time. Then there was getting back into the swing of things, and finally last week was the week of appointments with a snow day smack dab in the middle of the week. Fun.
Last week… ugh. Started bright and early Monday morning with an appointment with the endocrinologist who officially diagnosed me with type 2 diabetes. Meds, meter, set me up with an appointment to see the nutritionist, have I heard of Keto?, lose weight. (insert eye roll). Tuesday morning saw Princess Glitter Sparkle- yes still seeing her, still loving her, though she did suggest I keep a gratitude journal (ugggghhhh fine… but I don’t have to like it– yes I am wicked pissy lately). Then straight to Big One’s counselor who expressed his concern about Big One’s depression- we are too, trying to get a handle on what will help. A short lunch break and off to Little One’s counselor. I was sure making the rounds that day. (insert BIG eye roll here). Wednesday plans (more appointments) came to screeching halt with a snow day…. yay?!?! Thursday trip to see the ENT for a hearing test referral to HOPEFULLY get to the bottom of the ringing in my ears that is threatening to put me in the looney bin faster than my life will. He said it’s either hearing loss or… wait for it…. who the heck knows why ringing and either way there may or may not be anything that we can do for it??!?!?! If there is significant hearing loss I can fix it or live with it. And if it’s unknown reason well I have to live with it. (Gosh I love being me). After that went to Mary Poppins. Still love her. She wants to keep on keeping on regarding meds for now. Im good with that. Something stable right? After her I met with my case manager – I need to come up with a name for her. She drives me crazy. I don’t think I like her. Of course it could be that she handed me a big packet of articles about exercise, weight loss etc. (bang head on wall). Final visit rounding out the week was my urologist. I’ll spare you the gory details, but his parting words were- “any extra weight we carry makes things worse”
I GET IT ALREADY IM FAT I NEED TO LOSE WEIGHT. I get it. I do. I know that losing weight will make certain medical things better. But I just can’t seem to get motivated to do that. I want to say I need to get my head in order but really will there ever be a time where my head is in order and I am ready to lose weight? Who knows. I KNOW I need to be the “no excuses” girl I was 5 years ago. Sometimes I wish I could find her again. Though I will admit there were things about her that I could live without… but that’s a topic for another day.
So let’s see that covers “Best of Intentions” and “Really?….No Crap?”… onto Homeschool Part 2.
I already mentioned we were going to be homeschooling Little One. We started that last week in the midst of appointment-hell. It went well so far. She’s been happy to do her work, and seems to be enjoying what she is studying. But Friday night things came to a head with Big One. He’s been struggling… socially horribly all year… and it’s affecting his mood- obviously – he’s so depressed (as I mentioned above), and it’s affecting his grades. Not cool. He’s getting an F and a C-. Not cool at all. But Friday he got an email from his co-leader of the club he started at school, basically telling him that he was no longer a leader because he didn’t do enough behind the scenes things, and moreover that they weren’t friends anymore…. for basically all the issues that a child with Autism has—- self preoccupation, not thinking about how others are feeling, etc etc etc. HE CANT HELP IT. I wish I could scream that from the rooftops. HE CAN NOT HELP THE WAY HE IS. We have worked on this stuff for… forever…. there is only so much we can do.
I don’t get it, with all the talk these days about tolerance, acceptance etc why is it ok for people to not be that way to people like him? I can’t even.
So Friday night he got this email, and he lost it. He yelled, he screamed. He said he wouldn’t go back to school and he didn’t care who we called- crisis, the police he didn’t care. But worst of all? He sobbed and sobbed. Uncontrollably. My baby boy just shut down and cried. I haven’t seen him do that in years. YEARS. My heart broke, and I wanted blood. Of course I told him he didn’t have to go back to a place that has done this to him.
Insert note- I may or may not have had a PTSD moment bringing me back to my sophomore year when I was the child sobbing- into my pillow- and wishing I didn’t have to go back—
So we have been researching Charter Schools, but it’s hard mid-year. So we may be homeschooling him for the remainder of the year as well as Little One. That will bet interesting with my 4 classes. But I know God will get us through it all. But all I know is that I WILL protect my kids, no matter what. And if that means discomfort for me, so be it. I will take a much harder hit to my mental health if something were to cause my son to do something drastic… or even if he continued to be so unhappy. So judge me if you will. Some will. Some will say I made the wrong decision. Some will say he needs to be in school to get used to the “real world”. And to them I say- until you have seen your 15.5 year old son turn into a little boy rocking in your arms crying and sobbing, don’t judge me.
Until next time- (which I hope is sooner rather than later)
Turned in my term paper and took my final and with that this semester is closed. I have received my final grade in on class 98.75% not too shabby ;). Waiting on grades for my other 3 classes – supposed to post by Saturday.
I was looking forward to a good month off- but instead I decided to take a winter term class. WHAT IN THE WORLD IS WRONG WITH ME???
But by doing that I will be able to take 3 classes next semester (MY LAST ONE!!) instead of 4. And one class I took only lasts 7 weeks, so after that I will be in 2 classes until I graduate.
Other than that, things haven’t really changed – just plodding along. Hubby and I were talking yesterday and I said something – I don’t remember what- and he said in a surprised tone- do you think you’ll never get better?” I was brutally honest. I told him I am definitely losing hope of that and that I’m beginning to believe this is as good as it will ever get. He said he can’t believe that’s the case.
But it’s true. I think over the past couple of years and I don’t see very much progress. It’s disheartening.
I guess that’s all. Until next time…
Do you have those days/weeks/months/years when you feel like you are just done. Done with adulting, with fighting for every thing, with trying to get through the day? That’s where I am today. Sick and tired of it all.
The IEP meeting went horribly. All my predictions came true. And now we are facing what move to make next. I am already fighting the school to follow the IEP in place for my son, he has two years left. I don’t have it in me to fight another 10 years for help for my daughter. It’s not gotten us anywhere. So we are seriously considering bringing her home for homeschool again. Ugh. So many pros and cons- and neither side has an overwhelming majority.
All through the IEP meeting my whole body was shaking. I tried to take a drink from my water bottle (which I should fill with vodka next time) and I nearly spilled it all over the table. I even told the OT I disagree with her. She’s a useless person. Little one has an incorrect pencil grip, has trouble forming her letters the “right” way – like she starts her S at the bottom, and she many letter reversals- b and d, p and q sometimes a. Well the OT said they can’t correct the pencil grip and the formation because it’s now muscle memory and would be too difficult to fix. As for letter reversals they said they do that in K-1 so they can’t do that, plus in 2nd grade they don’t mark those wrong…. so hubby and I countered with – so we will wait till it’s “a habit and muscle memory that’s too hard to fix” and deal with it when she is failing and getting things wrong. And basically they said yes. WTH. They also don’t want to do an OT eval, because of her non-compliance with tests…. I was like, isn’t that indicative of a problem right there? She had no answer for that. STUPID.
Normally by now I have gotten Christmas decorations out. I am dreading it this year. It all seems like so much work.
I am thankful I am done my Christmas shopping other than what I need to get 2 friends. Things are getting worse, and at least that’s not hanging over my head.
So yeah… done.
Do you have that small voice in your head? You know the one that seems to wake up at bedtime and say “hey, you haven’t thought about <insert some worrisome thing here> in a while, let’s revisit that right now”.
Why???? Why must my brain constantly sabotage me? As if I don’t have enough on my plate- IEP for little one in 11hrs 29 mins… but who is counting…. oh yeah – me. Going in with my gloves on, but in truth- if they don’t give her what she needs I am probably done. I’ll take her out of school and homeschool her again. I know there are people who won’t support that decision but they don’t have to watch their child come home from school and lose it for most of the night because they held it together as best they could all day. I don’t know, little one could go one way or another if I pull her out she may be for it or against l. But I think it’s something her dad and I are going to have to think about and decide by Christmas.