My sister sent me a text today basically telling me all I do is talk about myself. I can’t tell you how hurt I was- maybe right now I am a little preoccupied – but part of the reason for that is that the last 38 years I haven’t focused on me at all. I’ve spent my life the peacemaker, the one always trying to make everyone else happy, and after a while that’s taken it’s toll. I mean I even called my Dad on Thanksgiving- the only kid who did. All this peacemaking has brought me to where I am.
I told hubby that maybe I’ll die during a procedure then she won’t have to hear about me or it anymore. He said let’s not wish for that… I don’t know I’m feeling so down and no one wants to hear about it except my husband who has to live it- I hate burdening him with it all. He drops his whole life to take me to treatments, he takes care of me.
Growing up my sister was my best friend- we used to talk about everything and anything. She said she is going to “call me out” when I’m being selfish. She doesn’t have time to listen to me repeat myself, and she understands where I am better than most (because she’s a counselor)– if that were true she would understand that the texts she sent destroyed me.
I went to church today- being around all these people made me realize how much I have fortified myself in my own little world at home, it makes me never want to leave my safe zone. My brother wants to come next weekend- now I am thinking it might be better to just wait until I’m done treatments, and then maybe I won’t be such a burden to everyone around me.
I’m seriously considering not going to my sisters for the concert I’m too hurt, and obviously she doesn’t want to know what’s going on with me and she says I only talk about me anyway so she wouldn’t miss me…
I might have some verbal diarrhea here for a while, since I have no one else to talk to….
I reread my post from earlier and I can’t stand my “tone of voice”. I sound like a stranger to myself. And I think in some ways I am. I was just on Pinterest and apparently 6 days ago sent hubby a pin that I don’t recall sending.
I messaged my sister earlier, I am supposed to go to her house in a couple weeks for the weekend. I told her I wasn’t sure about the entire weekend, and she immediately got pissed at me. Part of it is that I don’t want to miss church during Advent, another part is relying on hubby to move the elves, and little one will miss out on the Lego Advent calendar and big one will get to do it alone. Not to mention I have to cancel ECT on Friday because I can’t drive for 24hours. Money is incredibly tight right now, we are still waiting to hear the results of hubby’s appeal for SSDI. And when we get down to it, I am incredibly anxious about driving 4 hours each way alone (with just little one). I am nervous about everything. Not being in my own bed, not being with hubby (the one person who keeps me “ok”). I am nervous about a lot of things. But I didn’t explain all this to her, I just let her express her irritation at me, and tell me that she would be upset if I didn’t come. I didn’t say I wouldn’t come it was just that I might not stay Friday until Sunday. Its a lot. I don’t think she realizes how much preparation it takes for me to leave the house, never mind go a state away, be away from home for 3 days, and miss one of my ECT treatments.
I don’t know why I put all this here, she might read this, and I don’t want her to. I don’t want to tell her the truth. I don’t want anyone to know the truth about me. And the fact remains I don’t want to leave the house most of the time. I stay home as much as I can. I haven’t been good at keeping in touch with my friends since starting treatments, I pretty much am hiding as best as I can…..
I guess that’s all….
The memory problems associated with ECT can be quite unnerving. I picked up my glass 4-cup measuring cup off the counter today and stared at it. I couldn’t remember where it went. No matter how long I looked or how hard I tried to remember it was gone, poof. I had to ask my son where it went. It seemed like such a stupid question- it’s my kitchen!
It’s so weird to be doing something normal and the memory to be gone. I wonder if it’ll come back, or if some of my memory will always be gone.
I have had 3 ECT treatments, I don’t really notice much of a difference yet. But I don’t think I’m expected to, I think I am supposed to have 9-12 treatments.
My brain doesn’t work as well as it did. But I think it’s supposed to get better. It’s taken me a while to write this because my train of thought doesn’t flow like it used to. But my brain seems to work just fine when I’m having anxiety. Of course <insert eye roll> I wish that the ECT would make the anxiety go away the way some of my memories have….
I guess that’s all I have to say…. I’m sure there was more I intended to tell you all, but it’s disappeared like my memories.
Sorry I’ve been away awhile, ECT is kicking my butt, and I have almost constant headaches and anxiety. I think today was my 3rd ECT. I know they said to expect memory loss but this is crazy. I apparently went to PT yesterday, I apparently was given exercises that I have absolutely no recollection of… I remember some things from yesterday. Then I couldn’t remember if I got hubby a birthday present for tomorrow and if so what it was. Finally I remembered. I still can’t remember some of the things that I got people for Christmas.
Not only does ECT give me memory issues but it gives me a splitting headache. And my anxiety level is through the roof. I hope that it works- because if it works it’ll all be worth it.
Its actually kind of scary to be honest. You go in and they start an IV which always seems to take them 2 sticks, and then you go back to the room, they put electrodes on your foot, your side, your chest, Behind your ears and on your forehead. After that they put and oxygen mask on you, tell you to breathe deeply as they inject your IV first with the stuff to put you to sleep, today it seemed to take a little longer for me to fall asleep and I was afraid I’d be awake but I fell asleep before they gave me the paralytic and the electricity. Then I woke up in recovery missing memories and with a splitting headache.
They gave me ginger ale and graham crackers and once I was wide awake they let me leave.
I have a few days off and back to it on Monday.
I had my first ECT treatment today. I got to the hospital and the first thing the nurse did (well after I changed into their stylish gowns ha ha) was start my IV. After that the doctor came in and dida little bit of a physical just to make sure everything was good and they checked out the EKG I had last month.
After all that was done they brought me back to the OR. My question is this why is it that the OR is so much colder than the rest of the hospital. The ride to the OR it’s like it’s getting colder and colder and colder.
Once I was in the OR they put and oxygen mask over my face while they were talking and said that they were going to be injecting my IV and I say yes with something that burns as I felt the burn, at this point I could feel my soul start to fade and as I was drifting off I felt them put the ciff on my leg. The cuff was intended to be tightened so the medicine that they give you that’s the muscle relaxer won’t get down there and so only your big toe wiggles and that’s how they tell that you’re having the seizure.
The next thing I remember is waking up in the recovery room with a really bad headache and feeling nauseous and panicked because I didn’t know how my daughter got to school I thought we had left her at home alone keeping in mind she’s only seven this is a very disconcerting thought. I made the nurse, husband on his cell phone and find out, and he reminded me we had dropped her off at a friends house.
The next little while I was been to recovery trying to get rid of the headache and the nausea with Tylenol and Zofran after they felt that I was stable enough and awake enough they brought me back to my original room where I recovered for a little bit longer and they let me have ginger ale and graham crackers and after that I was free to go.
After we left the hospital I felt ok. I wasn’t happy and kitty but I also didn’t feel horrible. I don’t know it’s hard to explain maybe a little better- so I had hoped that this was working. But once I got home and all the meds wear off the overwhelming sense of doom, those butterflies in your stomach and the anxiety that makes me shake inside came back. Along with a headache so I’ve been taking Advil and trying to relax.
But wouldn’t you know this is the day my kids decide that it’s time for World War III. My next treatment is on Monday I will definitely update again after that.
One funny thing was when I was explaining to my daughter that I had surgery and she said where and I said on my brain she was like on your brain? and I said yes they put electricity into my brain and she said oh you mean like Frankenstein. I had to kind a laugh at that.